Reading time: 3 minutesWhile the term ‘lived experience’ is often used, it is rarely defined. This can lead to confusion and potentially friction, making it harder to share learning and establish good practice in involving lived experience.

Reading time: 3 minutesWhen I think back to my first experiences accessing health services, I was about the same age as many of the students we spoke to in the Involving Young People in Vaccine Decisions project. At the time, I didn’t realise that simply trying to get a diagnosis for my health challenges would teach me so much about how systems work and more often, don’t work for young people.